33 minutes agoNewsDuration 2:17Leo Dupont, a five-year-old from Steinbach, Man., was diagnosed in June with Niemann-Pick disease type C, a rare and fatal neurodegenerative disease. For months, his family has been asking the province to put a medication that could help slow the disease onto a list of medications covered by the Manitoba government. On Wednesday, after thousands of letters from the public, Health Minister Uzoma Asagwara approved the treatment for Leo.
5-year-old boy approved for medication to slow rare disease
